Tuesday, May 31, 2011

Comprehension

Dane has troubles understanding how to do things when told.  Part of the ability to comprehend what we tell him has us explaining things over and over to make him understand things clearer.  This is also true about his cognitive skills.  Cognition is how we perceive, remember, learn and think about information given to us.  The process of getting Dane to understand clearly is what is troubling to us.

Telling Dane "No" is probably the hardest for him to understand.  His therapist recommend drawing him a picture so he can see a visual of why he can't do something.  For example, why he doesn't hit his sister.  His therapist drew a simple picture of Dane with a our cat, Tom.  It says, "Yes, play with Tom."  Another pictures is circled with a line through it and says, "No sit, chase, kick"  It goes on to a 3rd picture of Dane kicking a ball.   It says, "Yes, kick a ball.  Finally, the last picture of Dane and Ally circled with a line through that says, "No kick Ally."  These visuals are to help him perceive information that he shouldn't do those things.  It's weird how his mind works.  Words to him mean nothing but a simple picture explains everything for understanding.

Sunday, May 29, 2011

Summer School

Danes teacher thought it would be a good idea to have him enrolled in summer school. Even if the teacher didn't suggest this I was going to enroll him. This is to keep in into a routine and meet new teachers and students to help with his social skills and prepare him for kindergarten. This will also give him a chance to do things that he is more interested in.

Children on the autism spectrum disorder (ASD) don't take routine breaking easily. Life changes and new obstacles lay ahead. It is best to keep him in a active school environment, or extended before the following school year.

Next year, Dane will have a new teacher and possibly new students added to his classroom. He will have to adjust like any other student but it will take longer with his autism. We show him his class picture to get to know the faces of his classmates.

We are slowly working Dane into a 5 day full time school week. We started with 1 three hour day on Fridays when he was 4 years old. At 5 years old we bumped him up to 2 full days a week. On Friday, he has his special education with more one on one time with his Speech Therapist, Behavioral Therapist, Musical Therapist, Occupational Therapist and Psychologist. Friday is the most important day for him and it upsets me when school is called off or there is no school. That is the day that focuses entirely on his needs.

Since Dane has been enrolled in school, he has gained much more in his social skills. He is talking more and not echoing back as much as he once did. Some of his vowels sound like other letters and is hard to understand what he wants. He gets frustrated until we figure out what he wants. After he gets across to us what he wanted he is very relieved as are we.

Being around children his age has had such an advantage to helping him learn to be more independent. He now can get himself dressed with less help. Sometimes it takes a few commands to get him started. Hearing him start to ask questions is very exciting also. Learning is an entirely different story with those of a certain disability. It takes more patience and time. Early intervention was the best option.

Thursday, May 26, 2011

Sensory or Behavioral Meltdown?

There has to be two forms of an autistic meltdown. Sensory meltdown and behavioral meltdown. I'm not positive of this. This is just my concerns from what I witness with my son.

A sensory meltdown occurs when the nervous system goes into a sensory over-load. This involves the sense of touch, smell, taste, sound and vision. When an over stimulating environment causes the mind to scramble and not process the information fast enough.

A behavioral meltdown happens when the autistic child doesn't get to do something and can't get a hold of themselves till they get it done with. No matter how small the situation.

Tonight my dad was on the phone and he hung it up without my son saying hello and goodbye to who was on the other end. This upset him to a point of a tantrum that wouldn't end. It is one of his routines to say "hello and goodbye" to the other person on the phone. Thus, the behavioral meltdown in my view.

I put it off and tried to let him cry himself out and calm down without my help. I thought it would only last a few minutes but it lasted a long time. Usually I try to rub his back or give him a tight hug for sensory stimulation but tonight he wouldn't let me near him. Maybe being tired and a nap cut short triggered this?

Going on to 40 minutes he wasn't getting any better emotionally. I had to do something about this. He was making himself sick he was crying so much. All because he didn't say "hello" on the phone.

It came to the point where I called my parents home phone from my cell phone. The phone rang and he finally got to say hello and goodbye to me on the other line. Now the tears turned into sniffles and sighs of relief. All it took was for me to call and have him answer.

It makes me sick thinking that it will be like this until he has more therapy. He needs to understand that some things he cannot do. He needs to not get so upset over the smallest things. I know I could have prevented the prolonged tantrum by calling earlier. I should have. I wanted to see if he could end it on his own but it wasn't happening. How do I redirect his attention to not focus on the phone? Nothing was changing his mind.

Sometimes a parent feels lost what way they can do or should have done earlier to prevent a situation like this.  The best way to handle a meltdown, is to prevent it from happening.  You just don't know what will trigger it off. 

Monday, May 23, 2011

Oobi - language development



There is a show on TV called Oobi on the NickJr. channel. This show has been on for some time. I thought it was lame the first time I seen it a few years back. Watching it now I see why it is the way it is.

The characters are people's hands with a set of eyes on them. They speak in really reduced sentences for children to develop language skills. My autistic son actually sat and studied the characters. This show also has good moral teachings. That is a hard thing to find now days on cartoons and TV shows.

Cartoons today are either too educational and boring or violent. What ever happened to silly and funny cartoons like Bugs Bunny and Garfield? Even Sesame Street now is about eating veggies. Not that that is a bad thing, but where is the humor? Sesame Street used to have a bunch of segmented clips about numbers, letters, colors and other educational meanings. Now, it focuses on a topic, like bubbles, and has the whole show on that. Then comes Elmo's World. That doesn't teach much either.

Speech delay was a big factor in my son's autism. He didn't start speaking until the age of 4. When he started speaking, he was echolalic. He would copy things we would tell him to do. Now, he is starting to ask questions for himself instead of copying what we say. He still has a puzzled look on his face sometimes we tell him to do something.

I will say that Oobi is a really good tool of language providing and morals when you have a child who has a delayed speech. Speaking slow, short sentences is how to get the communication skills working.

Wednesday, May 18, 2011

From Dusk to Dawn

I was hoping this was going to be the last week for my wife Dawn working the night shift. I think things will be better between us when she gets on 2nd. I won't have to get the kids up so early and fight to get them dressed and in the car half in their sleep. She will be able to sleep at night and take Dane to his therapy in the morning.

Right now she works all night and then drives him 40 miles one way to therapy for 3 hours on Tuesdays and Thursdays. We exchange the kids in the parking lot when I arrive for 1st shift. Some days she is so exhausted and can hardly stay awake. Luckily my dad is able to go with her to keep her company for the drive.

What gives? We had a half day of nice warm weather over the weekend and then 3 storms moved through with tornado activity. Today it cooled down to 40 degrees and it's very windy. I'd like to stay in the house but Dane was fighting to go outside. I kept telling him that it was cold and windy. Still, he insisted and will storm out the door with or without me.

I have several locks on all our doors from when he was younger trying to get out all the time. Now that he's tall enough he figures out to move chairs and unlock all of them. He teaches his sister this. Monkey see monkey do. I may have to use door alarms just to keep me alert if I take a quick shower or laundry in the basement.

I did get their winter coats and hats on and went outside. I let them ride around in their power wheels for a while. Eventually, Dane wanted back inside because he was getting cold. Ally wanted to stay outside. Those two are exact opposites. What one wants, the other doesn't. One gets and then the other cries.

We came back in and they both got the stomach bug. I was wiping their butts for the next hour. I was trying to put a shoe rack together to hang behind the basement door for all those shoes we have. Why do women and kids have so many shoes? During that process I took a small tip of my thumb off when I was putting it together.

The kids are intrigued by the old "Pee-Wee's Playhouse." I used to watch this on Saturday mornings when I was a kid. There is nothing good on for our kids to watch that is enjoyable for parents and children. The old Sesame Street was funny and educational for kids and parents but now it's not the same to watch. I am old fashioned and I like things the way they were when I was little. The only time to get good shows it to buy the DVD box sets. TV is not the same. It's all those lame reality shows. Please somebody, make them stop.

Sunday, May 15, 2011

Responsibility

We have taken on 2 guinea pigs to help with our children to learn responsibility. I make it my son's duty to water them. I make him check the water level every day and when it's close to empty, I make him fill it.  Soon, he will do it himself when he sets his routine.

When the bedding and food need to be filled and changed I have him hold the garbage bag when I empty. This makes him feel like he is needed and helping out.

It took him until past the age of 5 to finally dress himself. He will ask all the time if his shirt, pants, shoes and underwear are backwards. When I tell him "no" he tries to put on his clothes. He still needs help from time to time. Part of his autism always wants to know if he is doing things right.

Learning to take on responsibility for ones self is an important part of life. Occupational Therapy seems to be helping with that aspect of learning. Having a son on the autism spectrum disorder (ASD) I feel like I need to take on more chores to have him watch and learn from me.

When I put dishes away, I try to encourage him to help out. He usually wants to take out all the saucer lids and spin them or spin the sprayer inside the dishwasher. I want to break him of those autistic routines. It's okay to let him do it for a little bit but then it's time to stop. To let him do things like that and get away with it, that's all he would want to do.

Laundry time I let him put in the dirty clothes in the washer. Letting him take out the dry clothes also teaches him responsibility.  He still throws a tantrum if he doesn't start the dryer.  To avoid a meltdown and get away from the drama I let him start it.  He needs autism services to help brake these routines.

Picking up his toys also. We needed to use a picture schedule with this showing him what he needed to do. A picture schedule was needed for him to dress himself, bath time and bed time. He needed to see how these routines were needed to take on responsibility for himself.

We finally have been able to get Dane to sleep all night in his own bed.  For some reason he has to have the guinea pigs next to his bed.  He also needs a fuzzy warm blanket to swaddle himself in.  I think the blanket reminds him of Grandpa's house because they have the same blanket.

Children are fast learners. When you have a child with special needs it takes more time to teach them what they need to know. Eventually, they will have to do things for themselves. That's just how it is and that's the way it's going to be. I can't be around to wait on my son hand and foot every day because he has autism. He needs to learn to do things for himself.

Tuesday, May 10, 2011

Fox News - Autism Federal Government Settlements

http://video.foxnews.com/v/4687300/law-school-links-autism-vaccines-in-report/

I expected more information from this report. I guess the debate over vaccines and autism continues.  I was determined to see and hear a scientific judgement that would link autism to vaccines.  The report didn't tell me anything new other than some settlement cases related to autism.  (Which I knew already from past news reports) Unless a report comes out and says, "Definite Yes!  Link Found. No Doubt.  It's vaccine related."  They left me in the dark and in the middle of yes, no and maybe. 

It's like the moon landing conspiracy.  People believe man landed on the moon.  As to say vaccines cause autism.  Or, the conspiracy of the landing is a hoax and it was filmed at Area 51.  That would portray false space footage of an (actual) moon landing.  The point I am getting at with this is that I give the moon landing a 50/50 chance it actually happened.  We did, or didn't actually land on the moon.  In this case also.  50/50.  Vaccines do or don't cause autism.  I don't agree or disagree.  I don't know what to think so I am undecided on the issue of vaccines. 

Monday, May 9, 2011

Fox News - Vaccine Settlements & Autism

http://video.foxnews.com/v/4685191/probe-to-reveal-link-between-vaccine-settlements-and-autism/

I didn't want to believe it.  I put off thinking that children should be vaccinated.  They should to prevent illnesses. Fox news announces a ground breaking report about vaccines linking to autism. You cannot sue a vaccine company.  Why are there multi-million dollar government settlement amounts given to dozens of families whose children have autism? This report is going to be on tomorrow night.  Should be interesting. 

Seizures

When my son was little, we used to notice him clench and shake like he suddenly got the chills. It would only last a few seconds and we weren't sure what to think of it. As he got older it is not as noticeable but it still happens at times.

His teacher noticed this. During class he gets little tremors and goes into a daze. The teacher will wave her hand in front of his face to try to get his attention back. What is this about?

When we got the diagnosis of autism last year we had mentioned this symptom that we were witnessing. The doctor and Occupational Therapist didn't mention anything about it. We were referred to have intensive therapy to treat autism in my son. It was up to us to look into centers to find one that would be best for him. Luckily we live in a center part of the state where we live within a 40 minute drive one way.

A few weeks ago was my sons first day of intensive therapy for autism services. They took him into a separate room and did play therapy with him for about an hour. After the session the therapist told us what she had witnessed. "He's having seizures."

We brought up what we seen when he was little and what the teacher had told us what happens in class. Some time during his therapy they will include a neurologist and will hook him up to an electroencephalogram (EEG) and find out what triggers these seizures. 1 in 4 children on the spectrum disorder have seizures.

Friday, May 6, 2011

Case Worker Observation

I knew it would be like this.  Our case worker came by at 4 pm today to observe Dane and how severe his autism is.  He did everything she asked him to do within an hours time.  She asked him questions while I watched his sister.  He mostly played with his water table but took the time to bring me a broken screw that was sitting on my deck.  She asked him to bring the screw to me.

Allyson, my daughter, was playing with her push mower that blows bubbles and I needed to get the mail.  I took her by the hand thinking I had time to get it without Dane noticing.  Dane and his observer were on the other side of the house so I thought it would be safe.  Just as I was back on my side of the street with my mail, Dane seen that I got the mail without him.  He ran and grabbed it out of my hand and went to put it back into the mail box, closed it, and then took the mail back out.  He was on the verge of a meltdown.  His eyes were wide open and it looked like he was going to cry his eyes out.  That was adverted by him getting the mail.  If I did not let him, things would have gotten ugly with his emotions.

I took the mail into the house and then got Allyson her 4 wheeler power wheels ready for her to ride on.  The case worker had Dane fill a cup with water and put 3 dandelions in the cup.  He pulled out the flowers and counted, "1, 2, 3." and put them in the cup.

I am clueless to some of the things she asked of him because I was busy keeping his sister away from him.

The case worker asked me what kind of discipline I use.  I told her it depends if were inside or outside.  If we are outside, I told her we go back in the house if he doesn't listen.  If we're inside, I take his toys away.  I told her we tried "time out" with him but he would kick down the door.  Time out never worked because of that.  I told her that not going to Grandpa's house was how I disciplined because he always looks forward to going there.

Dane was a perfect angel during the whopping hour observation.  If she could only see what he's like when she isn't there to observe his behavior the other 23 hours of the day.

Tuesday, May 3, 2011

Assistance/Autism Services

Our county case worker stopped in tonight to check up on how Dane is progressing.  She usually makes it a once a month deal to see what's new or improving with his behavior.  We had Grandpa take him and his sister, Ally, to Grandpa's house so we could discuss his behavior.  She did not want him around to over hear us talking about him.  

Right now we do qualify for a little bit of state assistance.  Not much.  My insurance, which I will be fighting with in time, will have to cover past my deductible.  Up to 50k I think. The way she made it sound was the state might pitch in for the co-pay.  I don't even know how much that is but I don't think it is much.  To tell the truth though, I am not fully sure my insurance will cover anything.  I hope I am wrong and they pitch in what I pay for my premium and my employer pays.  The insurance can word their policies any way they want.  They make it sound like their on your side. They switch gears and reword things and say they don't cover autism services.  I really need to look more into my insurance or state laws on insurance paying for such services.

Friday she will be coming back to observe him further and see if we will qualify for further assistance.  I don't get it.  We were approved no more then a couple months ago.  She is going to make a choice if we get assistance based on one observation?  Is this going to be a case of he looks fine, leaves, and then his autism acts up and it's meltdown city?  You cannot see everything what happens in a one hour session, c'mon.  She has observed him at school before.

I think a lot of this is about the budget cuts their doing in the state.  She didn't say but that is why "I" think she needs to re submit her paperwork on my son.  They just may make a determination that he isn't "severe" enough for the state to help out.  But the state can continue to spend money on a bunch of other programs the screw the taxpayers even more.