Showing posts with label intensive autism therapy. Show all posts
Showing posts with label intensive autism therapy. Show all posts

Wednesday, June 8, 2011

water, left out & noises

It really heated up this week.  Yesterday and today reached a high of 96 degrees.  For the rest of the week we're back into the mid 60's.  It will probably storm with this cold front moving in.  It was so hot in the house I had to set up a sleeping area in our basement so we could all sleep.  I'd run our air conditioner but our electric bill goes way up.  I switched over to box fans for our windows but from what happened last summer the bill was no different then if I ran the air conditioner.  Why waste the energy if the house doesn't cool down?  Just go downstairs I figure.

Dane loves water unless it involves getting his hair washed.  My sister-in-law bought a water sprinkler system from the dollar store.  She thought that the older kids would have played with it but Dane was the only one.  Allyson, my daughter, stayed in the clear because the water was cold.  Once Dane ran through it once, he had fun with his cousins spraying him with their super soakers.  I originally bought the water guns thinking Dane would play with them but he can't squeeze the trigger.  I'd like to go back and maybe find him a battery operated water sprayer so he can play and get back at his cousins.

Grandma had 5 tickets to see the same circus we just seen last week.  I do not wish to see it again but my nephews didn't see it.  Grandma took my 2 nephews and had 2 tickets left for kids 12 and under free admission.  Dane overheard that they were going to the circus.  I told him that he already seen the circus and now it is Damian and Tylers turn.  He went to our truck and threw the booster seats in the back and then buckled himself in.  There he stayed spinning the wheels on his little car.  I came to check on him from time to time and ask if he was going to come out and play.  He said "No" and that he's going to the circus.  As long as he wasn't getting out of control I thought I'd let him sit in the car until he was ready to come out.

A while later Grandma and the boys left and Dane came out.  He took it pretty well seeing that Grandpa stayed back.  He got out his power wheels jeep and rode around the yard with his sister on her 4 wheeler power wheels.  I got out the go cart and we chased each other around the yard.  Dane wanted a ride because I gave Ally one.  He would have had a complete meltdown if I wouldn't have but it was no trouble.

Dane has his therapy tomorrow and I have FML off of work.  I get to talk with one of the counselors with my wife to discuss how things are going and if we need to work on anything new.  The noises he is making sticking out his tongue and unresponsive when we talk to him is to be of concern.  The counselor wants us to try and capture on video what he looks like during the process.  It may be seizure activity and may lead up to an EEG scan on his brain.

Tuesday, April 19, 2011

shift change bs

My wife was the only one to sign up from her 3rd shift back-up position and move to the 2nd shift spot.  Same job, different shift.  Our employer is giving her the run around and not giving her a strait answer why she isn't going to 2nd.  They go against their policy and write their own rules.  How does a job posting with confidential sign ups in the office leak out who signs up?

One woman went to the HR office and asked who signed up.  The HR lady said that my wife did.  That woman blabbed about my wife signing up and said something to the office.  That woman just doesn't want to train anyone to do her job when she is gone.  Why is it any of her business why my wife wants/needs to get on 2nd.

First of all, it's hard on her body staying up all night.  She's always tired and doesn't know when to sleep.  Second, my sons intensive autism therapy is 2 days a week for 3 hours.  My wife has to leave work and come home.  That's 20 miles right there.  She takes a quick shower, grabs some coffee and then travels another 40 miles one way to my sons therapy.   For the next 3 hours and then the drive home shes extremely wiped out.  And 3rd, it's hard on our marriage.  We never see each other and we raise our kids pretty much alone.

They better straiten this out really quick.  If my wife doesn't transfer, she'll give up her back-up job on the spot.  Then what?  2nd and 3rd will both need those positions filled.  How stupid are they?  Follow company policy, give her the transfer and then post a 3rd shift back-up position.  She has a one week window of weather or not she wants it and can transfer back to 3rd.  At least give her that option.  I am so sick of company politics and their rule bending.  I suppose if we were union we could file a grievance.  But were not.

Getting these kids out of bed, dressed and in the car at 5 in the morning is not easy.  They do not help me one bit in the least.  They curl up and whine.  One day Dane locked me out of the house.  He eventually let me back in and I made it to work on time. 

If and when my wife gets on 2nd shift I think that will be for the best.  She will be able to sleep at night and take Dane to his therapy before work.  I won't have to get the kids ready so early in the morning with me.  That will be peachy.  They only thing is that our daycare will have to watch my daughter all week for a couple hours until I get out of work.  I will have to pick Dane up from school right after.  I hope this gets easier in time.