Thursday, September 29, 2011

sensory sack/body sock

I arrived at the elementary school at 2:50 to get Dane out of school and take him to his therapy.  He was so proud of himself because he walked from his class all the way to the office by himself.  That was very exciting for me also to see how happy he was to walk himself.  For the past 3 weeks a teacher or other student had walked Dane to the office to meet with me.  He leaves 10 minutes before recess and gets ahead of the other classes and away from the noise and clutter of children working their ways through the hallway.  The first thing he told me was, "Daddy, I walked all by myself."  He had a big smile on his face and couldn't wait to tell his mother, Grandpa and his therapist.

I told Danes therapist about at times how he enters his own world.  He makes lots of noises.  He bothers his sister constantly even while I try to separate the two.  He bangs his head and his body twitches.  I told the therapist that Dane has been asking for "squeezes" also.  After I give him a firm hug and put pressure on his joints that helps to calm him.  Usually my wife would take him for a short drive around town and get him out of the house and away from his sister.  When they return, Dane settles down a lot.  I asked if there were any "sensory" toys or games he could use to entertain and calm himself without having to go for a drive all the time.

Dane in a sensory sack for comfort
Kate, Danes therapist, recommended a few things.  Bean bag chairs that he could be placed between for pressure.  She said he didn't think much of the weighted vest and didn't have one in his size to borrow.  She said he enjoys playing with the beans and running his hands through them and letting them fall through his fingers.  The last idea she has was the sensory sack or body sock it's called.  Kate used it during his therapy and he did good with it.

The sensory sack Dane really likes and we got to borrow it and see if it is worth getting one.  I noticed a difference letting him use it tonight.  The sack must be made from nylon that stretches and forces pressure on him and helps calm him down.  Nonetheless, he has fun with it and tucks completely in it and hides.  The only problem is that his sister, Ally, wants one too.  The first night I had to have them take turns because they fought over it.  It looks like I will have to buy two of them just to prevent constant fighting over it.

Sunday, September 25, 2011

Explaining Death

A while back before we gotten our guinea pigs Wubbzy and Gizmo, there was Nemo.  Nemo died of natural causes.  That, or it was the q-tip the kids threw into the cage. Nemo ate it within a matter of seconds before I had the slightest chance of getting it out before he ate it.  It happened that fast.  I didn't realize a q-tip could be gobbled up as fast as a human can suck spaghetti noodles by a small furry animal.

After Nemo died, I have to explain that Nemo is gone.  This is about a year ago, I tell the kids that he is with Jesus.  Where's Nemo?  He's with Jesus.  In heaven.  He's in a better place.  He's up in the clouds.  He's at peace.  What do I say?

I remember my wife telling me that Dane was shaking the cage and running back into the bed room saying that, "Nemo won't wake up!'  Uh, oh.  Nemo's dead.

Recently, the kids were fighting over their new night lights for their bed rooms.  I don't know exactly what happened and Dane got really upset.  He told my wife that she died like Nemo.  Needless to say my wife was hurt and appalled. She wanted me to explain to him how that hurt her and explain death further and have him apologize.

After school, I knelt down and told him that if daddy or Grandpa died like Nemo, he would never see daddy or Grandpa again.  I told him that since Nemo died, he hasn't seen Nemo.  Nemo's gone, forever.  I told Dane that that made mommy sad.  He didn't want to apologize because he wanted to play outside. I let him play a bit.  After while, I told him again to apologize and explain why we don't talk about dying.  If someone dies, their gone.  I want to make this a simple explanation but it seems to get harder as I explain.  Eventually, he apologized.  My wife asked what his apology was for and he said, "The night light."  Wow, something clicked and he understood what the apology was for.

I was proud that he said he was sorry on his own.  I took him to one of his cousin's houses to play with someone his own age.  He rode around in their Gator and rode bike.  He had fun.  He's been cooped up in the house all week.  Finally, he get's to go outside and run.  I hope the weather warms up a bit more and stops raining.  It won't be long and winter will be here soon.  Blah.

Wednesday, September 21, 2011

Time Out in School

After picking up Dane from school Monday I asked the usual question.  "How was school today?"  Dane usually responds with, "Good."  Okay, that's a start.  "Did you have fun?  What did you learn today?"  Dane says he likes school and that he got a time out.  A Time Out!?

I ask, "What happened?  Dane said, "I dunno."  Then all he said what that, "Teacher is naughty!"  I was getting ready for bed and my wife was out the door going to work.  I told her, "Dane got a time out today."  "For what? " She says.  I said he didn't tell me why.

The next morning my wife was getting Dane ready for school and she asked about the time out.  He responded with a horrible meltdown.  He may have been getting sick and not feeling well so he stayed home from school.

I brought up with Danes therapist that he had a time out and won't tell me what happened.  I asked her if she can get it out of him.  He gave her two stories what happened.  Either the whole class got a time out or just a small group including him got a time out for hitting.  I told the therapist that the teacher didn't say anything to me about this time out incident.  Maybe it wasn't that serious and that's why she didn't tell me or send home a note. I said that it was interesting that he told me and brought it to my attention.  That's progress with his communication that something happened.

Tuesday, September 20, 2011

Loud Noises - sensory intake

I had gotten the kids to sleep last night around 9 pm.  I sat down and read the new Wall E book with Dane and Ally.  Afterwords, it was time for them to get to sleep.  I was tired out from the sunny day we actually had.  Will this rain and cold and wind just go away so the kids can run around outside?    Where did summer go?

I woke up on the couch around 2 this morning.  I was going to go to my own bed and go figure, Dane wakes up crying and looking for me.  I have to get him back to his bed and lay down by his side and then Ally wakes up screaming.  Dane pushes away at Ally so I have to lay between them to get them to sleep.  I wake up at 4 and sneak out to get into my own bed.  Dane wakes up 5 minutes later crying for "Daddy!"  I swear these kids have instinct when I leave.  How else do they always wake up?

6 am I wake up with both kids again and I lay on the couch trying to get a little more sleep while they are wide awake scaring the guinea pig.  Eventually, I pull myself off the couch to get the house picked up. 

We go out to eat at the family restaurant in town.  We place our orders and get our food.  I am sick of ordering meals for the kids when they don't eat.  When we get home they say that their hungry.  We lock up all the cabinets because I don't want them snacking all the time.  We try and have a nice sit down family meal and Ally is falling asleep and antsy.  Dane is staring at the ceiling and shaking his head.  He has been shaking his head a lot lately and looking up.  That is something new.  Probably something to do with his sensory input.  My wife gives him a back rub to make him settle down.

I'm halfway through my meal and the kids have to go potty.  My wife takes them.  I make her take the kids to the womens room because mens rooms are disgusting.  After they do their business Dane washes his hands and is frightened to push the blow dryer butten.  He doesn't want to but he's curious if it will be loud or not.  He always gets ready to plug his ears.  He pushes it and runs out of the bathroom back to our table.  The kids are getting tired so I guess it's time to go.

My wife takes the kids out the door and they run off towards the highway.  She yells at them to stop and they do.  They get into the truck and I stay back to clean up the table and pay the bill.  We decide to go to Grandpa's house to relax.  The kids fall asleep within minutes of driving.  If they could only fall asleep that fast when it is bed time at home.